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Program is subject to change
Space limited - first-come, first-served
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Medical
Medical
PWBD
PWBD
WFH
WFH
WGBD
WGBD
Psychosocial
Psychosocial
Nurses
Nurses
MSK
MSK
Laboratory Sciences
Laboratory Sciences
Dental
Dental
Interpretation in <b>FRENCH AND SPANISH</b>
Interpretation in FRENCH AND SPANISH

Schedule by day

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  2. Schedule by day

Schedule by day

  • Tuesday, April 23, 2024
  • 07:45 – 08:45 CEST
    MSK Annual General Meeting

    Speaker: Cesar Haddad, MBA – Lebanese Association for Hemophilia

    Speaker: Carla Daffunchio, PT (she/her/hers) – Fundacion Hemofilia de Buenos Aires

    Speaker: Cindy Bailey, DPT OCS SCS ATC – Los Angeles Orthopaedic Hemophilia Treatment Center

    Speaker: Rohini Akash Dange, MPT – Sahyadri Speciality Hospital, Heamophilia Society of Maharashtra, Pune chapter

    Speaker: Antonio Gavrilovski, PhD (he/him/his) – University Clinic for Orthopaedic Surgery Skopje

    MSK

  • 09:00 – 10:00 CEST
    TU-FP-04 - Free paper session: Capacity building, advocacy and outreach models

    Chair: Deon York, BA(Hons), MA – Haemophilia New Zealand

    PWBD

  • 09:00 – 10:00 CEST
    TU-LAB-02 - Hemostasis laboratory in the era of non-replacement therapy

    Co-Chair: Annette Bowyer, PhD – Department of Coagulation, Sheffield Haemophilia and Thrombosis Centre, Sheffield

    Co-Chair: Rajiv K. Pruthi, MD (he/him/his) – Mayo Clinic

    Laboratory Sciences

  • 09:00 – 10:00 CEST
    TU-MED-06 - Women and girls with bleeding disorders

    Co-Chair: Inmaculada Soto-Ortega, PhD MD (she/her/hers) – Hospital Universitario Central de Asturias

    Co-Chair: Paula James, MD, FRCPC (she/her/hers) – Queen's University

    Medical

  • 09:00 – 10:00 CEST
    TU-MSK-03 - Hot topics: Challenging clinical cases

    Co-Chair: Gianluigi Pasta, MD (he/him/his) – Fondazione IRCCS Policlinico San Matteo Pavia

    Co-Chair: Antonio Gavrilovski, PhD (he/him/his) – University Clinic for Orthopaedic Surgery Skopje

    MSK

  • 09:00 – 10:00 CEST
    TU-PWBD-05 - Parenting with purpose: Strategies for navigating pediatric bleeding disorder care

    Chair: Soledad Rivero Haedo (she/her/hers) – Fundación de la Hemofilia de Argentina

    PWBD

  • 10:15 – 10:45 CEST
    TU-PL-MED - PLENARY: Defining success in haemophilia care – Are we doing it right?

    Chair: Kathelijn Fischer, MD, PhD, MSc (she/her/hers) – University Medical Center Utrecht

    Speaker: Alok Srivastava, MD, FRACP, FRCPA, FRCP – Christian Medical College

    Medical

  • 10:15 – 10:45 CEST
    TU-PL-PWBD - PLENARY: Oral health and quality of life: Let's talk intimacy, pain and self esteem

    Chair: Lochana Nanayakkara, BDS FDSRCS MSc FDSRCSEd (she/her/hers) – Royal London Hospital

    Speaker: Zikra A. Alkhayal, ABPD (she/her/hers) – King Faisal Specialist Hospital & Research Centre

    PWBD

  • 10:45 – 11:30 CEST
    COFFEE BREAK/MODERATED POSTER SESSIONS
  • 11:30 – 12:30 CEST
    TU-FP-05 - Free paper session: Young researchers

    Chair: Steve Pipe – Michigan Medicine Hemophilia/Coagulation | C. S. Mott Children's Hospital

    Medical

  • 11:30 – 12:30 CEST
    TU-DEN-02 - Dental management of people with complex or rare bleeding disorders

    Chair: Laura Beatriz Isidro Olán, PhD – Universidad Juárez Autónoma de Tabasco

    Dental

  • 11:30 – 12:30 CEST
    TU-MED-07 - PANEL: Making treatment decisions in a rapidly changing environment

    Co-Chair: Víctor Jiménez-Yuste, PhD, MD (he/him/his) – La Paz University Hospital

    Co-Chair: Pratima Chowdary, MD (she/her/hers) – KD Comprehensive Care Haemophilia Centre, Royal Free Hospital

    Medical

  • 11:30 – 12:30 CEST
    TU-PWBD-06 - Use of technologies for patients with bleeding disorders

    Chair: Rubén Cuesta-Barriuso, Sr., PhD (he/him/his) – University of Oviedo

    PWBD

  • 11:30 – 12:30 CEST
    TU-WGBD-01 - How to go from caregiver to patient, and from patient to advocate?

    Chair: Pam Wilton, RN, CRE (she/her/hers) – Canadian Hemophilia Society

    WGBD

  • 12:30 – 13:45 CEST
    LUNCH BREAK
  • 14:00 – 15:15 CEST
    TU-FP-06 - Free paper session: Quality of life/Outcome research

    Chair: Santiago Bonanad, MD (he/him/his) – Hospital Universitari i Politècnic La Fe

    Medical

  • 14:00 – 15:15 CEST
    TU-MED-08 - Rare bleeding disorders: Advances in management

    Co-Chair: Tadashi Matsushita, MDPhD (he/him/his) – Nagoya University Hospital

    Co-Chair: Tahira Zafar, MBBS, DCP, FRCPath – Hemophilia Patient Welfare Society RAWALPINDI PAKISTAN

    Medical

  • 14:00 – 15:15 CEST
    TU-MSK-04 - Innovative approaches in managing resistant ankle joints in hemophilia patients

    Co-Chair: Horacio Caviglia, PhD (he/him/his) – Buenos Aires University

    Co-Chair: Sofía Pérez-Alenda, PhD (she/her/hers) – University of Valencia

    MSK

  • 14:00 – 15:15 CEST
    TU-PWBD-07 - Gene therapy: A comprehensive look

    Chair: Margareth C. Ozelo, MD, PhD (she/her/hers) – Hemocentro UNICAMP, University of Campinas

    PWBD

  • 14:00 – 15:15 CEST
    TU-WGBD-02 - Transitioning through life stages for women and girls with bleeding disorders

    Chair: Yannick Colle (she/her/hers) – French NMO WBD Committee

    WGBD

  • 14:00 – 15:15 CEST
    TU-PSYCH-02 - Newer treatment approaches to mental health

    Chair: Diane Standish, MSW, LSW (she/her/hers) – Butler County Community College

    Psychosocial

  • 15:00 – 16:30 CEST
    IEQAS Q&A - *by invitation only
  • 15:15 – 16:00 CEST
    COFFEE BREAK/MODERATED POSTER SESSIONS
  • 16:00 – 17:00 CEST
    TU-LBA-01 - Late breaking session: New tech

    Co-Chair: Glenn Pierce, MD, PhD – World Federation of Hemophilia

    Co-Chair: Flora Peyvandi, MD, PhD (she/her/hers) – ISTH

    Medical

  • 16:00 – 17:00 CEST
    TU-MED-09 - Challenges in optimal treatment of children

    Co-Chair: Cristina Catarino (she/her/hers) – Centro Hospitalar Universitário Lisboa Norte

    Co-Chair: Shannon Meeks, MD, MBA (she/her/hers) – Emory University and Children's Healthcare of Atlanta

    Medical

  • 16:00 – 17:00 CEST
    TU-NUR-02 - Surgical experience with novel therapies

    Chair: Cathy Harrison, AdvDip, BMedSci, MSc (she/her/hers) – Sheffield Haemophilia & Thrombosis Centre, Sheffield Teaching Hospitals NHS Foundation Trust

    Nurses

  • 16:00 – 17:00 CEST
    TU-PWBD-08 - Who are we today? Spotlight on 'rarely' heard narratives

    Chair: Tatiana Bathfield – Haemophilia Association of Mauritius

    PWBD

  • 16:00 – 18:15 CEST
    TU-MSK-WKSP - Musculoskeletal workshop 3: Optimizing musculoskeletal management for PWBD

    Chair: Adolfo Llinas, MD (he/him/his) – Fundacion Santa Fe de Bogota

    MSK

  • 17:15 – 18:15 CEST
    TU-MED-10 - Unresolved issues in hemostasis in hemophilia

    Co-Chair: Riitta Lassila, MD, PhD (she/her/hers) – Comprehensive Cancer Center, Hematology, Coagulation Disorders Unit - University of Helsinki

    Co-Chair: Sophie Susen, MD,PhD (she/her/hers) – CHU Lille

    Medical

  • 17:15 – 18:15 CEST
    TU-MED-11 - Diagnosis and treatment challenges in lower resource countries

    Co-Chair: Veena Selvaratnam, MBBS, MRCP, FRCPath – Ampang Hospital

    Co-Chair: Daniela Beatriz Neme, MD (she/her/hers) – Foundation of Hemophilia, Argentina

    Medical

  • 17:15 – 18:15 CEST
    TU-WFH-02 - Gene therapy registry

    Chair: Donna Coffin, MSc – World Federation of Hemophilia

    WFH

  • 17:15 – 18:15 CEST
    TU-PWBD-09 - One third of us: A comprehensive look at mild hemophilia

    Chair: Jennifer Maahs, MSN, PNP – IHTC

    PWBD

  • 18:30 – 19:30 CEST
    WGBD Networking Event